SCIENTIFIC PROGRAMME (click to download excel format)

 

15TH EUROPEAN NEUROFIBROMATOSIS MEETING
  September 6 , 2012  -  HALL A September 6 , 2012  -  HALL B
9:00 15:00 Whole Day course for GPs, Medical Genricists, Neurosurgeons, Dermotologists, Child Neurologist, Pediatrician and Pediatric Oncologist : Neurofibromatosis Clinical, Genetic and Epidemiologic Characteristics, Learning Disabilities and Hyperactivity, Learning  
9:00 10:00 Neurofibromatosis: Clinical Characteristics:
Banu Anlar
10:00 10:30 Epidemiology :
Şakir Altunbaşak - Gülseren Bayraktar
10:30 11:00 Coffee Break
11:00 11:30 Genetics: Şükriye Atar
11:30 12:00 Learning Disabilities and Hyperactivity
Victor Mautner
12:00 13:00 Lunch
13:00 14:00 Neurofibromatosis and Cancer; Optic Glioma
Rejin Kebudi
13:00
15:00
Welcoming Lay Groups
Registration Desk
Other Malignancies - Ali Varan Frederik Van Genechten
14:00 15:00 Opening Ceremony And Opening Lecture
15:00 15:30 Official Opening: Chair and Speaker : Şükriye Ayter  
15:30 15:45 Welcome NF Turkey + Intermezzo :
Gülen Bayraktar - Gülseren Bayraktar
15:45 16:30 Chair: Nancy Radner
The History of the Neurofibromatosis and Its Message for the Future
Vincent M. Ricardi
19:00 21:00 Opening Ceremony And Frendship Evening
15TH EUROPEAN NEUROFIBROMATOSIS MEETING
  September 7 , 2012  -  HALL A September 7 , 2012  -  HALL B
8:30 9:30 Neurofibromatosis; Clinical Aspects :
Chairs: Eric Legius - Sabiha Aysun
 
Neurofibromatosis Type One:
What We Know and Don't Know:
Susan Huson
Neurofibromatosis Type Two:
Gareth Evans
9:30 10:00 Coffee Break
10:00 10:30 Oral Presentations 10:00
12:00
European NF Lay Groups Meeting
10:30 11:30 Neurofibromatosis; Diagnosis: Chairs:
Maurizio Clementi - Derya Erçal
  Chair:Gülseren Bayraktar
Frederik Van Genechten
New Diagnostic Guidelines for NF-1:
Moleculer Procedures :
Ludwine M. Messiaen
10:30
11:00
Coffee Break
Rare Forms of Neurofibromatosis:
Eric Legius
 
11:30 12:00 Oral Presentations
12:00 13:00 Lunch 12:00
13:00
Lunch
13:00 14:30 Neurofibromatosis and Treatment:
Chairs: Roger Packer - Tülay Kansu
13:00
14:30
European NF Lay Groups Meeting
Chair:Gülseren Bayraktar
Frederik Van Genechten
Neurofibromatosis and New Treatment Strategies:
Bruce Korf
Bevacizumab and Neurofibromatosis:
Victore Mautner
Surgical Treatment of the Intracranial and Spinal Tumors in Children and Adolesecents With Neurofibromatosis:
Jeffrey Wisoff
14:30 15:00 Coffee Break 14:30
15:00
Coffee Break
15:00 19:00 City Tour (Optional) 15:00
19:00
City Tour (Optional)
15TH EUROPEAN NEUROFIBROMATOSIS MEETING
  September 8 , 2012  -  HALL A September 8 , 2012  -  HALL B
8:30 9:30 Neurofibromatosis and Oncology: Chairs:
Münevver Büyükpamukçu - Carla Carollo
8:30
8:45
Welcoming Lay Groups
Registration Desk
Neurofibromatosis; Malignant Diseases and Treatment:
Roger Packer
Frederik Van Genechten
Neurofibromatosis and Optic Pathway Glioma :
Giorgio Perilongo
8:45
9:30
Aspects of NF1 and NF2
TO BE CONFIRMED
9:30 10:00 Oral Presentations 9:30
10:00
Endocrinologic problems in NF1:
Feyza Darendeliler
10:00 10:30 Coffee Break 10:00
10:30
Coffee Break
10:30 11:00 Neurofibromatosis and Other Problems:
Chairs: Gareth Evans, Sibel Ersoy Evans
10:30
11:30
How to Talk About NF to Children
And Teenagers:
Marie -Laure Armand
Neurofibromatosis Type One and Dermatology:
Pierre Wolkenstein
11:00 12:00 Neurofibromatosis and Endocrinology:
Chairs: Abdullah Bereket
Dusica Babovic Vuksanovic
Endocrinologic Problems in Neurofibromatosis:
Feyza Darendeliler
    Neurofibromatosis One and Bone
Juha Peltonen
11:30
12:00
Value of Collaboration Between
Scientists and People Affected
      TO BE CONFIRMED
12:00 13:00 Lunch 12:00
13:00
Lunch
13:00 14:30 Poster Presentations 13:00
13:30
Overview Research Programs and
Their Aims:
Eric Legius
      13:30
14:00
Therapy for NF2:
TO BE CONFIRMED
      14:00
14:30
Questions and Answers
14:30 15:00 Coffee Break 14:30
15:00
Coffee Break
15:00 16:00 Neurofibromatosis and MPNST: 15:00
15:30
NF Type  1 and Skin Lesions:
TO BE CONFIRMED
Chairs: Mehmet Alikaşifoğlu
Conxi Lazaro Garcia
15:30
16:00
Treatment for Plexiform Neurofibromas:
TO BE CONFIRMED
Molecular Analysis and NF1 Associated:
Meena Upadhyaya
16:00
16:30
Bone Deficits in NF1
TO BE CONFIRMED
    Clinical Presentations and Imaging Studies of MPNST
Rosalie E. Ferner
16:00 16:15 CTF and Programs : George Orfanakos
16:15 17:30 Oral Presentations 16:30
17:00
Questions and Answers
19:00 23:00 Gala Dinner On Boat 19:00
23:00
Gala Dinner On Boat
15TH EUROPEAN NEUROFIBROMATOSIS MEETING
  September 9 , 2012  -  HALL B
9:00 10:00 The Management of Neurofibromatosis: Chair:Susan Huson
    The Management of Neurofibromatosis: Eric Legius
    Pschyosocial Aspects of Neurofibromatosis : Gülin Evinç
10:00 10:30 Coffee Break
10:30 11:00 Oral Presentations
11:00 12:00 Round Up Congress
Presentation NF Europe Projects
Presentation Next European NF Congress